Brain & Life

• The Many Faces of Cerebral Palsy with Micah Fowler, Phoebe Rae Taylor, and Kelsey Cardona

  In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by actors Micah Fowler, Kelsey Cardona, and Phoebe Rae Taylor. Micah shares how his Cerebral Palsy (CP) diagnosis differs from the character who he played on ABC’s Speechless and his sister Kelsey explains the benefits of this representation that she’s seen in real-time. Phoebe Rae then explains how she got her role in Disney’s Out of my Mind and how acting has inspired her for the future. Dr. Peters is then joined by Dr. Ann Tilton, a Professor of Neurology and Pediatrics at LSU Health New Orleans with more than 30 years of experience in the field. Dr. Tilton explains what CP is, how it can differ from person to person, and what advancements the community can look forward to.   Additional Resources What is Cerebral Palsy?  Biking Gives Freedom to a Teen with Cerebral Palsy Becky Dilworth Skied and Raised a Family Despite Cerebral Palsy   Other Brain & Life Podcast Episodes on Similar Topics Scoring Goals with CP Soccer’s Shea Hammond Gavin McHugh is Building an Acting Career and a Community with Cerebral Palsy RJ Mitte on Living Confidently with Cerebral Palsy   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at [email protected]   Social Media: Guests: Micah Fowler @micahdfowler; Kelsey Cardona @thekelseycardona; Phoebe Rae Taylor @phoeberaetaylorx Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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• Families Finding Advocacy and Disaster Preparedness: Highlighting Brain & Life Magazine Articles

  In this week’s episode, Brain & Life Podcast hosts Dr. Daniel Correa and Dr. Katy Peters discuss some of their favorite articles in the most recent edition of Brain & Life Magazine. They discuss how families are leading the charge in rare disease advocacy, how people living with neurologic conditions can be prepared for natural disasters, and what brain fog really is. If you would like to read these articles and more, be sure to subscribe to Brain & Life Magazine or read the issue online!   Brain & Life Articles Mentioned How a Brain Injury Survivor is Offering Others Help and Hope How Families Are Leading the Charge in Rare Disease Advocacy Natural Disasters Can Be More Dangerous for People with Neurological Conditions—Here’s How You Can Prepare What Is Brain Fog?   Other Brain & Life Podcast Episodes on These Topics Actor Cameron Boyce’s Legacy and Raising Awareness About SUDEP Raising Awareness for a Rare Cancer with Love4Lucas President Hide Harashima Advocacy and Assistive Technology with Former Representative Jennifer Wexton Actress Yvette Nicole Brown Discusses the Caregiving Journey We Are Brave Together with Jessica Patay   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media:   Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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• Advocacy and Assistive Technology with Former Representative Jennifer Wexton

  In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by dedicated public servant and former U.S. Representative for Virginia's 10th congressional district Jennifer Wexton. She shares about her journey with progressive supranuclear palsy (PSP) and what she has learned from the PSP community. She also discusses the importance of advocacy and the use of assistive technology, including the AI-generated voice she uses during this episode. Dr. Correa is then joined by Dr. Janis Miyasaki, a movement disorders specialist who practices at the University of Alberta in Canada where she is the head of the department of clinical neuroscience and co-directs the Neuropalliative Care Clinic. Dr. Miyasaki explains PSP and discusses what the care experience may look like for someone living with PSP and their loved ones as they search for comfort and peace. Interested in getting involved with advocacy? Learn more here: https://www.brainandlife.org/get-involved/advocate/     Additional Resources Former Representative Jennifer Wexton Breaks Barriers with AI-Generated Voice Amid PSP Battle The Research Pipeline for Progressive Supranuclear Palsy CurePSP   Other Brain & Life Podcast Episodes on Similar Topics Family Stories: Diagnosing a Neurodegenerative Condition The Future of Caregiving with Kat McGowan Still Standing with Staff Sergeant John Kriesel   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at [email protected]   Social Media: Guests: Jennifer Wexton @repwexton; Dr. Janis Miyasaki @ualberta Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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• Self-Discovery and The Lost Voice with Songwriter Greta Morgan

  In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by songwriter, storyteller, and multi-instrumentalist Greta Morgan. Greta shares her journey being diagnosed with spasmodic dysphonia and how it has changed every aspect of her life, leading her to write her memoir, The Lost Voice. Dr. Correa is then joined by Dr. Brent Richardson, board certified Otolaryngologist (Ear, Nose, and Throat physician) with a specialty in Laryngology at The Bastian Voice Institute. Dr. Richardson explains what spasmodic dysphonia is, how it’s diagnosed and treated, and different factors that may affect each person’s experience with the condition.   This episode features music from throughout Greta Morgan’s musical career. To hear more, visit https://www.gretamorganmusic.com/.   Additional Resources The Lost Voice: A Memoir Remaining Positive After a Spasmodic Dysphonia Diagnosis Dysphonia International   Other Brain & Life Podcast Episodes on Similar Topics Billy McLaughlin on Life as a Musician with Focal Dystonia Rogers Hartmann on Beating Dystonia   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at [email protected]   Social Media: Guests: Greta Morgan @gretamorgan; Dr. Brent Richardson @bastianvoiceinstitute Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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• Jessie Owen on Advocacy, Awareness, and Parenting

  In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by disability advocate, content creator, and speaker with a focus on accessibility, equity, and innovation in spinal cord injury research Jessie Owen. Jessie is a quadriplegic mother of twins and shares some candid insights on life, parenting, and navigating systemic barriers with humor and authenticity with Dr. Peters. Dr. Peters is then joined by Dr. Shelly Hsieh, attending physician and Assistant Professor, Physical Medicine and Rehabilitation at Montefiore Einstein. Dr. Hsieh’s discusses outpatient care for people living with spinal cord injury and related disorders and shares some exciting upcoming treatment options.   Additional Resources Jessie’s Story What is Spinal Cord Injury? A Spinal Cord Injury Survivor Opens an Affordable Rehab Center   Other Brain & Life Podcast Episodes on This Topic “Roll with Cole & Charisma" On Building a Life Together as an Interabled Couple How Disability Advocate Wesley Hamilton Became Empowered by Adversity   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206   Social Media: Guests: Jessie Owen @itswheelyjess; Dr. Shelly Hsieh @montefiorehealthsystem Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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